Dont you dare

I'm not here to tell anyone how to live their lives, or what to do, or how to grieve, or how to support us in our grief. I'm not and I don't.
However, I am about to tell you the most important lesson I have learned in the last year. What goes on within the lives of the Duffys who live at 429 Summers Drive is more important than anything else. We will make any and all decisions about our lives in the best interests of those Duffys. I understand that means that our decisions will sometimes conflict with the desires of others. Before my daughter died, that would have mattered. It doesn't any more.
What matters now is my husband and my daughters and our lives and what we have to do to survive and get by. Most of those close to us have been extremely respectful of our wishes and have been tremendously supportive, and for that we are endlessly grateful. It is the love and caring that you have shown us that has helped us get by this last year, and without you, I'm not sure what we would have done.
Unfortunately, there are those of you that have felt the need to criticize us, condemn us, attack us and tell us that our decisions were wrong. I'm very sorry that you feel that way. Sorrier than you can imagine that you chose to attack us on the anniversary of our daughter's death. Sorrier than you can imagine, that you have chosen to shut us out of your life. Sorrier than you can imagine, that I can't make you understand that I don't second guess our decision for one second, and that your selfishness only reinforces that decision.
I've lost a lot of sleep in the last week trying to figure it out. I have called and tried to talk. Most of my phone calls have gone unanswered and unreturned. When the calls were answered, I wasn't heard. This blog has been used as ammunition against me. This blog is the ONE place that I can put all of the poison that is inside my mind. This blog is the place where I can put the words that I cannot speak because they are too physically painful. This blog is for me. I don't use this blog to communicate to others. This blog is for me. I leave it open to the public because I have been told that people read it to understand grief, because I hope if another grieving mother stumbles upon it, she'll know that she's not alone and she's not crazy. I use it share information about bleeding disorders, and our experiences as a bleeding disorder family. I recognize that I am part of a community and it's my responsibility to share my story, and that means all of my story. That however doesn't give anyone the right to use this blog as a weapon to attack us because I am not behaving or living the way you think I should. If you don't like it, don't read it. If you don't want to hear my story, don't read it. If you don't like what I do, say or decide, don't read it. If you haven't walked a step in my shoes, then don't you dare tell me what I should or should not be doing, saying, thinking or living.

Comments

  1. Niki,
    You are so strong and an amazing mother, wife, and an amazing friend as well. I wish that others could at least see that. You and Duffy have had to endure so much this past year, and you all gave handled everything with such compassion and love. Please know that there are so many of us behind you 100%. I am here for anything. Love you all! :)

    Kerri

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  2. Niki, I have kept up with your blog over the past year...and I can think of ABSOLUTELY NOTHING that you have said on here that could or should be used against you. I don't know exactly what you are going through at this time, but I can say it is through these struggles that you truly find out who is for you and who is against you...It sounds like you have an amazing support system of friends (one I am envious of as I haven't been able to make long-term connections because of our various moves). It sounds like you need to wash your hands of whoever is saying negative things to or about you. Only you know what is best for your family. Take care!
    Kathy (Crossland)Thomas

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  3. anyone who would do such a thing is nothing but pathetic. you have an amazing family, and have been through SO much. How could anyone be like that. The strength you and your family has helped, not only me but I'm sure many others. People like that aren't worthy to be in your lives!

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  4. :( This makes me so sad and mad all at once. You shouldn't have to justify anything.... not any decisions and not how you grieve.

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  5. As one of many "family" members who are behind you and Duffy and the girls I read your blog, i stand ready beside you both to help with making this blood disorder known, understood and I pity those who do not understand the importance that this blog has been to you in this past year. writing has always been a form of healing for as long as I can remember. Duffy and you need to know that family isn't always those that share your genetics but those that love with you, for you and wait to help you with whatever it is you need, an ear to listen, a hand to hold, a heart to support, a shoulder to cry on... we are here for you however you need us for we love you today and always !!! HUGS Love M

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  6. Yes, I agree so much, Norma. I just think it is horribly sad to lose family when they are already hurting so much. :(

    I just know that I am a part of Team Izzy and Team Niki and Team Duffy and Team Duffy Girls. You guys have my love and support and I cannot imagine anything you could do that would make me take that away.

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  7. Well, I have no idea what kind of low-life slug would attack you or your family, but if you catch me in the right mood, I can TAKE.THEM.OUT......and I have a back hoe....just saying!! Love ya and I think you are awesome!!

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